A collection of stories of people afflicted by MS or who have loved ones afflicted, this book is meant to be informational regarding the disease as experienced by real people and to showcase the amazing strength people find when facing adversity.
The MS Project has a companion iPhone app also being released March 14th, 2011.
Multiple Sclerosis Gets on My Nerves by Dr. Laina Turner- Molaski
Multiple Sclerosis (MS) is a disease of the central nervous system that comes in many different looks and styles, which not only makes it difficult to diagnose but to treat. Some people with MS experience pain, some like my mother never have any pain. The disease tends to affect women more than men and no clear cause is known.
My mother was diagnosed with MS when I was in junior high, so I spent many years watching her deal with the affects of the disease. She was never one to bring attention to herself or be an advocate for things. She was rather introverted, so she was never involved in any MS awareness or fund raising things. As I got older, not being an introvert, I decided I wanted to be more involved and to do my part in creating more awareness. I knew that Susan G. Komen started from grass roots and look at the amazing things they have grown to be able to do. In my mind, even if my efforts just make one more person aware of what MS is and bring just a tiny bit more attention to the disease, then I have succeeded.
The MS Project is my effort to make a difference, no matter how small. By bringing people together who have MS or who care about the cause, I feel the effort will become even stronger.
Laina’s mother was diagnosed with Multiple Sclerosis (MS) in 1985. After her passing in 2000, Laina became committed to bringing more awareness to the disease.
You can reach Dr. Turner-Molaski through the website The MS Project at http://www.themsproject.com/.
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2 comments:
What a wonderful way to bring more awareness and understanding of MS.
This is a condition that I am all too aware of as I was diagnosed with MS in 2002. For me, the most difficult thing to handle about the condition is the fatigue. It is a fatigue unlike any other - not the I feel sleepy, I need a nap kind of fatigue, but a my muscles are too tired to hold my body up any longer kind of fatigue. I hate how limited I feel with it, but when you're raising two daughters on your own, you learn to deal with it so you can be there for them.
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